I have a neuropathy called Charcot Marie Tooth, or CMT.
I have lived with it for about ten years, as paralysis overtook my feet and lower legs. I had to learn to wear braces called AFO's which allowed me to walk on feet that had become useless. Over time, as it progressed, I first used canes to augment the braces and then graduated to a rolling walker. I usually didn't make a big deal out of it, although I often put off getting what I needed until the absolutely last moment...or probably should have had it for a while.
Unfortunately, the disease is now progressing in a way that is going to present challenges of several types as time moves forward. It has been in my hands for a while, and just like my feet, I adapted as they weakened. My wife became the jar opener of the house, and I've even had to ask my kids to help me with sticky doorknobs.
Yet, now the weakness in my hands is starting to progress into partial numbness and paralysis. The saving grace up till now has been that it takes very little strength to push the keys on a keyboard, but now my fingers are starting to completely lose their ability to move in certain directions. My index fingers will no longer move toward my thumb, making the G,H,T, and Y keys real adventures. My little fingers are losing lateral motion as well.
Needless to say, this development is going to present serious challenges to my writing career. I' probably should have looked into this sooner, but I guess it's time to start exploring options involving changing my typing style, or even looking into voice recognition software since mouseclicking is getting more difficult too. Sadly, hands are not like feet nd braces will not help them.
Right now, I hate this disease with an intensity that goes beyond words. I just remind myself that if it hadn't been for CMT, I would have never been forced to sit down and write in the first place. It offers some consolation. But now it threatens to take that career away. and if I'm going to continue I'll have to figure some things out.
I'm hoping to find a workable solution. I still have some stories to tell.